tag:blogger.com,1999:blog-2262777051500586436.post2579457909194742014..comments2023-12-26T03:04:05.367-08:00Comments on Kalydeco for Cystic Fibrosis Diary: Alex Parker: Alexandrena Parkerhttp://www.blogger.com/profile/18288856906410276708noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2262777051500586436.post-40610915314673286432013-04-09T04:42:50.311-07:002013-04-09T04:42:50.311-07:00This is wonderful. Thank you for sharing. I hope y...This is wonderful. Thank you for sharing. I hope you are continuing to thrive on kalydeco. Blessings to you from a mama to a beautiful Miss 11 with cf double delta 508Leahttps://www.blogger.com/profile/18266691379070059672noreply@blogger.comtag:blogger.com,1999:blog-2262777051500586436.post-49876110735104741292012-10-18T09:04:45.923-07:002012-10-18T09:04:45.923-07:00That's great Alex, my daughter is G551D/F508 a...That's great Alex, my daughter is G551D/F508 and we're in the UK still waiting to get Kalydeco, hopefully it won't be long. It gives us all hope over here when we hear how well it's working elsewhere in the world. Keep well :-)Anonymoushttps://www.blogger.com/profile/14071855271830221720noreply@blogger.comtag:blogger.com,1999:blog-2262777051500586436.post-23391769749940609622012-10-14T10:06:32.121-07:002012-10-14T10:06:32.121-07:00Fantastic news, Alex! My daughter has a splicing ...Fantastic news, Alex! My daughter has a splicing mutation and she is on Kalydeco off label. It has helped her go from 37% FEV1 to 61% in 10 weeks! Maybe we can connect on Facebook? I'll look you there. So happy for you!Teresa F.https://www.blogger.com/profile/07040325964880850495noreply@blogger.com